Today's chemo was easier than the first. I think it was because I knew what to expect. It's 9:00 pm and only now am I tired and feel like bed is the place to be. I was able to go out for the Friday Grant Family dinner. (Always at a restaurant - no one has to cook for 9 - 12 people!). Last time, I took a nap in the early evening and woke up with nausea and a headache. So, the simple answer was -no nap this time
The staff at the Sinai Infusion Center was once again very nice, very efficient and caring. My nurse today was Sherri. We talked about how someone else's energy can be shared to the benefit of the recipient. That's right up my alley! She encouraged me to have a positive visualization of the chemo's effect. So, instead of thinking about had bad the drugs are, I tried to think about how good there were working, just like Jeff said a few weeks ago. I closed my eyes and directed the drug to travel through my blood to go to every lymph node, all the lobes of my liver and into the alveoli of my lungs. I encouraged the drug to destroy all the cancer cells, anywhere in my body and especially the darn thing in my armpit!! Then, I opened my eyes and finished working on the Friday crossword puzzle in the paper.
Our family friend, Kathy, picked me up at Sinai and took me home. My sister Nancy drove me to pick up N. later at school. Thanks, ladies!
I had breast cancer - but I got better.... A posse is a group of people who ride out with you into the teeth of trouble. They generally have your back. This blog contains notes for all those who have watched and supported my ride...
Jan 22, 2010
Jan 21, 2010
New Stuff
I saw the oncologist today. Tomorrow is Chemo #2. She wanted to see me the day before to see how Chemo #1 went. We talked about various and sundry side effects and how they resolved, or didn't resolve. I got a few more prescriptions to get filled. I take, or can take if I need to, five or six drugs in addition to the chemo. This from someone who used to carefully think over taking a Tylenol! Oh, well, it's all temporary. And if the extra drugs help get me through this, then OK, I'm in. But, back to the oncologist. She told me today that the dosages of the chemo drugs I'm given are much lower than they used to be when breast cancer treatment caused really horrible side effects, like lots of vomiting. They (researchers and docs in the field) found that they could decrease the dose of Cytoxan, say, from 2 grams down to 600 milligrams. They get the same result from less dose with fewer side effects! Yea! I am very grateful. I am standing on the shoulders of all my sisters before me who suffered with the higher doses. Without all the experience and knowledge about treatment previous breast cancer patients gave the docs, I'd be vomiting, too. I can't say that the treatment I'm getting is a picnic, but - no barfing yet!
Jan 14, 2010
Nancy
Thank God for chemo drugs. Thank God for Adriamycin and Cytogen and Taxol. Thank God for Herceptin. Thank God for all the crazy drugs they give you to combat side effects like Emend and Decadron - they each have their own side effects!
Breast cancer doesn't hurt. There is no pain to wish gone, no injury to hope to recover from. No anticipated surgery that will fix everything and make you whole again. Breast cancer patients are already whole, for the most part. So, to make yourself sick and expose your body to poisons and debilitation seems so wrong! But, to live, treatment is the only choice. So, thank God for the drugs, every damn one of them. Working in healthcare, it's so easy to be a bit cynical about drug companies but thank God for them, too. And thank God for all the researchers and doctors and medical professionals and hospitals and universites who spent so much effort and time in developing and testing the drugs. Thank God for every last participant in every damn Race for the Cure that ever was! And thank God for Susan Komen, who died after her battle with breast cancer 30 years ago. Last but never least, thank God for Susan's wonderful sister who started the worldwide breast cancer awareness movement in memory of Susan. Susan's sister's name? NANCY - just like my wonderful sis! But my Nancy won't lose me because of everthing that's been done in the last 30 years. Thank God!
Breast cancer doesn't hurt. There is no pain to wish gone, no injury to hope to recover from. No anticipated surgery that will fix everything and make you whole again. Breast cancer patients are already whole, for the most part. So, to make yourself sick and expose your body to poisons and debilitation seems so wrong! But, to live, treatment is the only choice. So, thank God for the drugs, every damn one of them. Working in healthcare, it's so easy to be a bit cynical about drug companies but thank God for them, too. And thank God for all the researchers and doctors and medical professionals and hospitals and universites who spent so much effort and time in developing and testing the drugs. Thank God for every last participant in every damn Race for the Cure that ever was! And thank God for Susan Komen, who died after her battle with breast cancer 30 years ago. Last but never least, thank God for Susan's wonderful sister who started the worldwide breast cancer awareness movement in memory of Susan. Susan's sister's name? NANCY - just like my wonderful sis! But my Nancy won't lose me because of everthing that's been done in the last 30 years. Thank God!
Jan 13, 2010
5 Days Post 5 Days Post
It's been five days since the first chemo treatment. I feel better - almost normal! Just a little reflux easily controlled with good ole Tums. And, I really have a new appreciation for good ole ginger ale. I feel like I'm still into the process of facing so many treatments. Every other week til March, then every week until May!! Boy, I must have it really bad. Don't think Cheryl Crow and Christina Appelgate had so many treatments. Lucky me. But, with help and strength, I'll do it! And come out at the other end healthy and whole again.
Tried on a wig the other day. I can't really get too excited about the wig. It's beautiful and kind of light auburn and a little longer than my current short haircut. Here's the plus - I can wash it in the sink, shake it out, let it dry and plop it on my head. I think, when all the treatment is done and my own hair grows back, I'll put it (the wig!) through the shredder! BWA - HA- HA
Tried on a wig the other day. I can't really get too excited about the wig. It's beautiful and kind of light auburn and a little longer than my current short haircut. Here's the plus - I can wash it in the sink, shake it out, let it dry and plop it on my head. I think, when all the treatment is done and my own hair grows back, I'll put it (the wig!) through the shredder! BWA - HA- HA
Jan 12, 2010
Not So Bad
Got the first chemo last Friday. Everything is not so bad. Does chemo make you depressed? Don't know. It is like a lightbulb switched off, though. I feel kind of down. Of course, considering the circumstances, well, duh! Physically, it's not as bad as I thought it would be. I had a little nausea over the weekend, but those drugs they give you for it are REALLY good! Mostly, I'm tired. They said I might have trouble sleeping from the steroids they need to pre-treat you with but I've been sleeping 10+ hours per night so I guess they won't be a problem. It seems like I will be getting treated for such a very long time! I'm such a weenie about feeling bad. Hope the blog dosen't turn into a whine-fest...
Jan 8, 2010
Chemo - Day 1
Hi - I want to tell you a little about what happened on the first day of chemo but first I need to thank you all very much for your prayers, thoughts, messages of encouragement, phone calls and good wishes! They are all communication from your spirit to mine (and God's). I believe that we are all connected - this is not just New Age touchy-feely stuff. When I study the sciences, I learn more about how we are all connected, physically (really!). Many religions teach that we are all one, and so we are. You thoughts send me POWER and I feel it. Thanks! By the way, if someone could communicate the winning Lotto numbers ahead of time, I'd appreciate that too!
So, Chemo, Day1:
Took about 4 hours. Started with port access, blood test, steroid injection, anti-upchuck meds, etc. Then came two injections over ten minutes of the "Red Devil", Adriamycin (don't google it - too scary!). Then, a one hour infusion of Cytoxen (ditto on the google-ing). The nurses and staff at the Sinai Hospital Infusion Center are awesome! On this first day of chemo, we had so many staff visitors giving us support and info that we never even turned on the TV and I didn't finish a single crossword puzzle! I felt real good when we left so we went out to lunch and then stopped at Princeton Sports. Got home, took a nap and felt crappy when I woke up - headache and nausea. Drank lots of water, breathed, walked around and visited with David and N. Felt much better by 6:30 pm and ate an old standby - saltines and tomato soup! And I can't leave out 'The Simpsons' therapy. Comes on channel 54 at 6:00 and 7:00.
So, Chemo, Day1:
Took about 4 hours. Started with port access, blood test, steroid injection, anti-upchuck meds, etc. Then came two injections over ten minutes of the "Red Devil", Adriamycin (don't google it - too scary!). Then, a one hour infusion of Cytoxen (ditto on the google-ing). The nurses and staff at the Sinai Hospital Infusion Center are awesome! On this first day of chemo, we had so many staff visitors giving us support and info that we never even turned on the TV and I didn't finish a single crossword puzzle! I felt real good when we left so we went out to lunch and then stopped at Princeton Sports. Got home, took a nap and felt crappy when I woke up - headache and nausea. Drank lots of water, breathed, walked around and visited with David and N. Felt much better by 6:30 pm and ate an old standby - saltines and tomato soup! And I can't leave out 'The Simpsons' therapy. Comes on channel 54 at 6:00 and 7:00.
Good News and Bad News
More pathology results. I got some more details from the Oncologist. My cancer cells are the type with HER2NEU receptors. If you remember the cartoon of a cell that you learned about in Science class, picture it with some HER2NEU 'spikes' on the outside wall. The spikes are the receptors; receptors pick up chemicals that tell the cell what to do. The bad news first - cancer cells with these receptors are aggressive and grow fast. (could be why I 'suddenly' noticed a lump in my armpit.) The good news is that there is a treatment that very specifically targets these cancer cells and not a whole lot else AND the treatment is very effective. The treatment contains HER2NEU antibodies - yep, antibodies are what your body makes when you have an invasion of bacteria or virus like when you get a cold or are exposed to the flu. So, I get injected with these lab-created antibodies that travel through my bloodstream and ATTACK the cancer cells! This is called TARGETED therapy and creates a lot fewer side effects. I stiil need to do conventional chemotherapy first, but then I get Herceptin (the fancy antibodies) for a few months.
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